Comments on: Next time I stick with the hyperbaric chamber

By: Sloan

Sloan — Wed, 26 Nov 2008 01:30:25 +0000

I recently read an article in a magazine about this! I can’t remember the details but I do remember that people will go through all kinds of tests that show nothing wrong. The problem is sometimes not diagnosed. It is something with the little crystals in your inner ear — I think they are made of calcium carbonate. I know it sounds crazy. There is a maneuver that is performed that solves the problem. It resets the crystals. You lay with your head kind of hanging down off of a table and then the dr. turns your head a particular way.

Okay, since it sounds so crazy I just googled it. There is a lot of info out there. I hope this helps you. Here are the google results!
http://www.google.com/search?sourceid=navclient&ie=UTF-8&rlz=1T4DKUS_enUS287US287&q=calcium+carbonate+crystals+inner+ear

By: heatherinparadise

heatherinparadise — Tue, 14 Oct 2008 14:12:59 +0000

The wonderful Dr. I see at the hyperbaric chamber is named Dr. Eduardo Rovirosa, could that be the same Dr. you saw?

I hope you get to the bottom of this soon, it must be so frustrating. Good thing it sounds as if you have wonderful friends and family who love and support you.

By: Michelle Winchester

Michelle Winchester — Sun, 12 Oct 2008 05:02:58 +0000

I think that the tests are worth it – but I would really look again at your food. How much wheat to you eat? It is a terrible inflammatory. And then dairy next. Those are my triggers. I’m just thinking for me, getting the MS diagnosis – they want you to just use a diagnosis as a reason for a symptom to be there – I don’t know – I’ve always found food connections to the many symptoms for western med – they just want you to take a medication for it. Like my vertigo – my docs are always like – just take this med and it will go away – well, yes that is true – but if I stay away from wheat and dairy I can take it less – or not at all. Just my plea for you to look again and again at your food intake. If there is something that you are craving – it is probably wrong for you. Thinking of you and glad to hear your positive outlook – at least here in print.

By: Jonna

Jonna — Sat, 11 Oct 2008 02:43:18 +0000

hmph!

I’m glad you are getting the rest of the tests. It’s kind of like you are in for a dime so spend the dollar. I intend to use you as an example if I decide I’ve had enough of all these tests I’m doing. You should check out the comments on my blog as many people are wishing you well and also suggesting things.

By: Coral K

Coral K — Fri, 10 Oct 2008 22:43:23 +0000

I was diagnosed with “essential labynthitis” about 8 years ago after they could not find anything on MRI and several miserable tests involving the ear drum and pinging soundwaves . Not fun! The ENT thought I had a tumor on the auditory nerve…causing extreme vertigo, nausea and vomiting..could not even walk because my balance was shot. It finally abated by itself (with the help of Antivert and Phenergan) but it has never gone away completely. I still get the dizzies when I lie down or change head positions abruptly.
We are returning to PaaMul in Nov. Can we bring you anything? jars of peanut butter?/ books? Let me know and we will be glad to bring it down. Best wishes to you…

By: Coral K

Coral K — Fri, 10 Oct 2008 22:33:34 +0000

Some 8 yrs ago on a trip to Costa Rica I came down with extreme vertigo, nausea. vomiting and assorted misery. I spent the rest of that birding tour just trying to stay alive and not ruin the trip for my sister. When I got back home, I went to an ENT who did every test known to man, I swear, on my head and ear canals. He thought I had a tumor on the auditory nerve. Nothing showed! I was diagnosed with “essential idiopathic labrynthitis” and have never gotten completely rid of that dizziness. It abated, of course, but it is there whenever I move my head quickly and lie down at night. I just learned to live with it…didn’t really have a choice. Perhaps this is what you will have to do if they cannot isolate it. Lived with Antivert and Phenergan if the nausea didn’t subside. Good luck. We will be seeing you in PaaMul before too long. Can we bring you anything??

By: Mamahops

Mamahops — Fri, 10 Oct 2008 15:51:01 +0000

The docs have all danced around this diagnosis but I’ve ruled it out due to no loss of hearing and the mareo is constant – it doesn’t come and go like Meniere’s is supposed to do. But thanks! I’ll give it another look.

By: Nancy

Nancy — Fri, 10 Oct 2008 15:17:47 +0000

With all of your knowledge and internet savvy you have probably already explored this…but could it be Meniere’s Disease? My sister has it, and it was difficult to get diagnosed at first. Usually there is some ringing in the ears but loss of balance/vertigo is most of it. She has it under control by watching her salt consumption most of all, but she has a mild case.
Hope you get to the bottom of it, soon.